tag:blogger.com,1999:blog-3637563600968316769.post2082950291185497045..comments2024-01-24T09:06:15.678+00:00Comments on A Drake's Progress: CasablancaDrakeygirlhttp://www.blogger.com/profile/04044143270148143924noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-3637563600968316769.post-25311434039823500032013-02-27T15:18:44.105+00:002013-02-27T15:18:44.105+00:00If by testing for a "thyroid problem" yo...If by testing for a "thyroid problem" you mean they've checked her TSH levels only, that doesn't say SQUAT about anything. There are a range of various thyroid hormones they need to test to get an accurate picture of how the body is able to absorb and utilise the hormones. Unfortunately, the NHS will only test those if the TSH comes back abnormal (basically, over 5 - unlike in most other countries where they cap it at 3, tops).<br /><br />So yeah, you can still have a thyroid problem even if the tests come back "normal". I've had a multitude of symptoms for most of my life, and according to the doctors, there's absolutely nothing wrong with me, because my blood tests have always come back "within the normal range".<br /><br />You can check http://tpauk.com/ (Thyroid Patient Advocacy UK) for more information. :)Traxyhttps://www.blogger.com/profile/13249884092846934427noreply@blogger.comtag:blogger.com,1999:blog-3637563600968316769.post-61865740936593200422013-02-20T11:44:22.866+00:002013-02-20T11:44:22.866+00:00My daughter was the same ie, no medication, but I ...My daughter was the same ie, no medication, but I once listened to a speaker who said that if drugs helped the person cope with life better, then to think about using them. I much prefer to look at managing behaviours, but, there are times when meds can help. I know your daughter is much younger than mine, but when mine was in her late teens and life was too much for her to cope with, she went onto Citalopram (anti anxiety) which really did help.<br /><br />Each person is uniquely different and that's where the problems lie, I guess.Tui Chizownhttps://www.blogger.com/profile/11362569853162067460noreply@blogger.comtag:blogger.com,1999:blog-3637563600968316769.post-80137476164765550862013-02-19T18:22:08.541+00:002013-02-19T18:22:08.541+00:00Hi, Tui.
My daughter has not been on any medicatio...Hi, Tui.<br />My daughter has not been on any medication, apart from the Genotropin (growth hormone) she has been taking since she was 4. We've stopped this while the doctors are looking at what might be causing the sleeplessness. <br />Interestingly, throughout all of these spells of sleeplessness and unusual behaviour, food seeking or obsessiveness has not been an issue - in fact she was probably less acutely aware of mealtimes etc than normal!<br />We're still in a quiet period at the moment and sleeping has been good.<br />Drakeygirlhttps://www.blogger.com/profile/04044143270148143924noreply@blogger.comtag:blogger.com,1999:blog-3637563600968316769.post-72625988928987507172013-02-18T23:35:42.108+00:002013-02-18T23:35:42.108+00:00Glad things have calmed down a bit.
Here's a...Glad things have calmed down a bit. <br />Here's a comment from a service provider who read your blog (I passed on your link)<br /><br />Yes, unfortunately, I personally work with others with, and without PWS that had similar sleeping problems..... especially when the state reduced HPC awake staff to OSOC funding at night.<br />It created anxiety, hope to individual they would have more chances to food seek etc.<br />Some consumers were in search of food, increased attempts to sneak, stay up thinking and thinking about what they could do at night etc.<br />Trazidone and other sleeping medications were introduced 1 hour before typical bed time and it helped the individuals a great deal.<br />There are SO many reasons for sleeping variations, I assume it is best to evaluate individual's current meds, , diagnosis, environment, life circumstances etc. sometimes, a sleep study is recommended as well.<br /><br />Other parents said:<br /><br />My 33 year old daughter has been recently introduced to different short term medication to help her sleep and is not agreeing with her. She is now in a zombie state.<br /> <br />Please let me know if your child has taken any of the following medication and if so please let me know how it affected your child – Zyprexa or Seroquel (quetiapine).<br /><br /> I have heard from support staff that the following medication has been effected with some PWS individuals – PROPRANOLOL – please let me know if your child has taken this medication and whether it was effective.<br /><br />----<br />I'll keep asking...<br />Tui Chizownhttps://www.blogger.com/profile/11362569853162067460noreply@blogger.comtag:blogger.com,1999:blog-3637563600968316769.post-32124388302934838402013-02-18T19:40:56.101+00:002013-02-18T19:40:56.101+00:00Ah, blessed sleep. You never know how good it is t...Ah, blessed sleep. You never know how good it is till you're missing it. Happy for you. That's a lovely picture of your daughter too. <br /><br />Susan xAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3637563600968316769.post-68439288764029431362013-02-17T17:03:13.434+00:002013-02-17T17:03:13.434+00:00Great news. Been thinking about you all. What a lo...Great news. Been thinking about you all. What a lovely treat for you both! Happy sleeping.<br />Anonymoushttps://www.blogger.com/profile/18143893582063150969noreply@blogger.comtag:blogger.com,1999:blog-3637563600968316769.post-49018166740255729162013-02-17T08:13:54.609+00:002013-02-17T08:13:54.609+00:00This seems apt.<a href="http://www.imdb.com/title/tt0034583/quotes?qt=qt0429961" rel="nofollow"> This </a> seems apt.John Meddhttps://www.blogger.com/profile/10547777949324509522noreply@blogger.com