tag:blogger.com,1999:blog-3637563600968316769.post6702107149936876963..comments2024-01-24T09:06:15.678+00:00Comments on A Drake's Progress: ContritionDrakeygirlhttp://www.blogger.com/profile/04044143270148143924noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-3637563600968316769.post-60264495921795665662012-12-18T16:57:02.074+00:002012-12-18T16:57:02.074+00:00You too, Malc.You too, Malc.Drakeygirlhttps://www.blogger.com/profile/04044143270148143924noreply@blogger.comtag:blogger.com,1999:blog-3637563600968316769.post-42796648969871153092012-12-18T16:56:38.696+00:002012-12-18T16:56:38.696+00:00Thanks, Giula, and to you too!
You're right - ...Thanks, Giula, and to you too!<br />You're right - we're always very aware that not everything can be put down to PWS. She is a teenager, after all. We're keeping a close eye on her, liaising closely with the school, and will discuss any new issues with her consultant when we see her next. Thanks for your comments.Drakeygirlhttps://www.blogger.com/profile/04044143270148143924noreply@blogger.comtag:blogger.com,1999:blog-3637563600968316769.post-42208496594109211332012-12-18T16:53:59.523+00:002012-12-18T16:53:59.523+00:00Indeed.Indeed.Drakeygirlhttps://www.blogger.com/profile/04044143270148143924noreply@blogger.comtag:blogger.com,1999:blog-3637563600968316769.post-81245877560466236582012-12-18T09:53:29.104+00:002012-12-18T09:53:29.104+00:00Wonderful blog as always. Re the Amazon incident, ...Wonderful blog as always. Re the Amazon incident, I've had a similar thing happen with my son - in his case Angry Birds power-ups. Needless to say, I was absolutely livid indeed (love that phrase!) but hopefully all sorted out now. If we can teach him that (200 + 100 free) is not the same as 300 free, then that's another step in the right direction.<br /><br />Have a lovely Christmas.Malcnoreply@blogger.comtag:blogger.com,1999:blog-3637563600968316769.post-65052534657884788262012-12-13T16:32:56.871+00:002012-12-13T16:32:56.871+00:00Hello,
Do you think that your daughter tests boun...Hello, <br />Do you think that your daughter tests boundaries more often than usual ? If so, could you figure out why ? Do you think that she expresses her anxiety over more boundary testing whereas when she was younger, she expressed her anxiety differently ? <br /><br />Do you think that it's time to assess her needs and, maybe responding to it differently ? <br />After all, your daughter is 14 years old now, and what worked when your daughter was 7yo may not work as well now, some needs may have changed... <br /><br />Do you think that your daughter can have sensory issues that she didn't have as a child, but she cannot explain them to you as well as a more typical child ? <br /><br />Do you think that she receives appropriate treatment from doctors <i>to suit her current needs</i> ? (so, not the needs of last year or two years ago, her needs now)<br />After all, you are the expert of your daughter. <br />Doctor are specialist of disorders, you are specialist of your child. <br /><br />Do you think that her diet plan is workable currently ? Have you seen more food seeking behavior currently ? Does she beg for more food ?<br /><br />I don't have any sort of magic solution to help you, and I apologise if my comment is off target. <br />But it sounds that it's very difficult to sort what is adolescent behavior, what is due to her intellectual disability and what is due to PWS. It can also be due to other needs unrelated to PWS. <br /><br />I wish all the best to you and your familyGiulianoreply@blogger.comtag:blogger.com,1999:blog-3637563600968316769.post-2491776175034217782012-12-13T11:47:57.113+00:002012-12-13T11:47:57.113+00:00Christmas amnesty, but only until January 5th. The...Christmas amnesty, but only until January 5th. Then it's back to being absolutely livid at all times.Jon Peakehttps://www.blogger.com/profile/04471926651090670258noreply@blogger.comtag:blogger.com,1999:blog-3637563600968316769.post-29205197782064368872012-12-13T08:57:30.209+00:002012-12-13T08:57:30.209+00:00Thanks, Rachel. That's very kind of you to say...Thanks, Rachel. That's very kind of you to say so. I find writing this so cathartic - it's a place where I share the good stuff and let off steam about the bad stuff, and in the process don't get overwhelmed by all the...stuff.<br />I'm glad it resonates with you. Have a great Christmas yourself xDrakeygirlhttps://www.blogger.com/profile/04044143270148143924noreply@blogger.comtag:blogger.com,1999:blog-3637563600968316769.post-80514333182761746012012-12-12T20:47:48.573+00:002012-12-12T20:47:48.573+00:00Love this post. In fact, love all your posts. As i...Love this post. In fact, love all your posts. As it's coming to the end of the year and there's always that small doubt that we all may self combust with the stress of the season, you need to know the pleasure that your blog provides. The familiarity of the situations you write so fabulously about make such fantastic - and comforting - reading. So, so good to know that we're all in this together and that our kids, however testing, are not alone in their weird and wonderful ways. So thank you, lovely lady, for sharing, for the reassurance and inspiration you give, for writing so brilliantly about the absurdities of our lives and lastly and most importantly, for the laughs. Merry Christmas......<br /><br />Rachel xxxxxRachelnoreply@blogger.com