A Drake's Progress

Friday, 18 March 2022

Stunned

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It's not often you're left stunned in the supermarket.  I mean, there was that one time I queued up at customer service behind a gro...
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Sunday, 16 May 2021

Escalate

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Prader-Willi Syndrome is a train ride. An old-fashioned, steam-billowing, noisy, tooting train ride. Staying on the tracks is tough, corneri...
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Sunday, 4 October 2020

'Erriot

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My girl is 22 today. As you can see from the photo, hair-brushing was not first on the agenda this morning, but opening presents was. Her lo...
Wednesday, 10 June 2020

Vulgar

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My daughter spent a long time tackling a college task today; she had to write independently about how she has been affected by life in lock...
Thursday, 21 May 2020

Day Twenty Six

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So it’s done.   After 25 blogs in 26 days I rashly vowed to let my son loose on my hair with electric clippers in what was ...
Wednesday, 20 May 2020

Day Twenty Five

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I like a big finish. Tomorrow will be the last of my 26 blogs in 26 days to raise money for the Prader-Willi Syndrome Association, the ...
Tuesday, 19 May 2020

Day Twenty Four

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I just fell through a portal into the past.   The sight of our newborn baby girl in an incubator in the hospital's Special Care Ba...
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About Me

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Drakeygirl
Writer, music lover, and mother to a girl with a rare genetic condition called Prader-Willi Syndrome (PWS). This blog will tell our story. With added music. And jokes. Well, it's either this, or I'll have to express it through the medium of interpretive dance, and no-one wants that.
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