A Drake's Progress

Today is Rare Disease Day . It’s a day designed to raise awareness amongst the general public and decision-makers about rare diseases and...

I found out something amazing today. A friend’s son was due to come round to see us. He’s in his 20s, and has Asperger’s, and it’s qu...

I was picking up my daughter’s Prader-Willi Syndrome Best Friend Forever (PWSBFF) for the now traditional school holiday sleepover. We we...

They breed, you know. My daughter's tried-and-tested, repetitive mantras suddenly beget new ones. But brand new  perseverating questi...

I’m in training. Not for a marathon - I did a half marathon years ago and cemented my belief that there is absolutely no need to run a st...

I’ve never worn ribbons in my hair, or displayed a penchant for gingham dresses. I also swear like a trouper, so you may be surprised when...

"Well, I was playing the clarinet, the phone rang, I jumped, and..." My daughter's interesting interior. I have a new fav...