A Drake's Progress

Saturday, 30 April 2016

Defenders

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To other eyes, my daughter might not have looked especially engaged. Compared to some of the hardcore teeny, tiny, indie kids jumping and d...
Tuesday, 26 April 2016

Moment

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It came sooner than expected. My mobile rang. “Mum, I’m here.” She’d walked the whole way to school on her own.  I told her she’d d...
1 comment:
Wednesday, 20 April 2016

Solo

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If you look closely at this photograph, in the distance, you’ll see a figure in a purple coat. If you look again, you’ll notice tha...
7 comments:
Saturday, 9 April 2016

Grand

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We decided to do the old home-made sweepstake for today’s Grand National. I took the kids round to Nanna and Grandad’s, we snipped ou...
2 comments:
Tuesday, 5 April 2016

Herriot

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My daughter’s voice sometimes carries a long way. Some of her statements seem perfectly timed to ring out and shatter those odd occasiona...
3 comments:
Friday, 1 April 2016

Mishappiness

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My daughter’s school holiday sleepover tradition with her PWSBFF (Prader-Willi Syndrome Best Friend Forever) was upheld this week. Fi...
Friday, 25 March 2016

Decolonisation

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We headed back from the hospital. In the boot was a bag of scrubs and ointments that have to be administered to various parts of my d...
4 comments:
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Drakeygirl
Writer, music lover, and mother to a girl with a rare genetic condition called Prader-Willi Syndrome (PWS). This blog will tell our story. With added music. And jokes. Well, it's either this, or I'll have to express it through the medium of interpretive dance, and no-one wants that.
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