A Drake's Progress

Tuesday, 22 November 2016

Corrie

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“You’re Tracy, aren’t you?” my daughter asked. Tracy Barlow - or rather Kate Ford, the actress who plays her in Coronation Street, nodd...
Sunday, 13 November 2016

Stricken

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When you’re 18 years old and you have special needs there are many things you might be worried about.  What new health issues will yo...
Monday, 7 November 2016

Samples

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It’s been a year of hospital trudging, and last week we had two appointments in three days. The first was a look-see, x-ray and pre-op ...
Tuesday, 25 October 2016

Mulling

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We sat in A & E for an hour or three. My daughter had returned from her residential trip with bruised knees where she'd stumble...
Monday, 17 October 2016

Missives

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My daughter is on her residential course .  I got a missive earlier.  Oof. Heart lurch. And now I’ve just had another one...
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Sunday, 16 October 2016

Beyond

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The rain was pelting down. But she had a sturdy pair of walking boots on and a tough waterproof mac. And a bag with loads of changes of c...
Monday, 10 October 2016

Swimathon

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My daughter has Prader-Willi Syndrome (PWS), a rare and complicated chromosome disorder. So on Wednesday October 26, I will be front-craw...
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Drakeygirl
Writer, music lover, and mother to a girl with a rare genetic condition called Prader-Willi Syndrome (PWS). This blog will tell our story. With added music. And jokes. Well, it's either this, or I'll have to express it through the medium of interpretive dance, and no-one wants that.
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