A Drake's Progress

Thursday, 11 January 2018

Vision

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Anxiety besets us all, but when you’re the parent of a child with PWS, you get beset by their besetting too. We had a seemingly simpl...
Sunday, 31 December 2017

Cope

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She’s flying in the face of fashion now,   Seems to have a will of her own. I’ve always liked Sir Julian Of Cope’s World Shut Your ...
1 comment:
Monday, 25 December 2017

Midnight

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So it’s just gone midnight on Christmas Eve. Thinking about it, it’s actually Christmas Day. And I’m feeling a touch melancholic. (Whic...
1 comment:
Friday, 10 November 2017

Presentation

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It was just a few steps. My daughter was one of 25 or so pupils who were being honoured at a school presentation evening. She and I...
Saturday, 30 September 2017

Balls

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It’s our 22nd wedding anniversary and we’re ensconsed in Sandy Balls. (It’s the name of a holiday park, all right? Yes, I know it’s wei...
1 comment:
Tuesday, 29 August 2017

Sandwich

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This thing about being a ‘sandwich carer'. It sounds like a euphemism for being fat, you know, along the lines of ‘salad dodger’. W...
4 comments:
Sunday, 23 July 2017

Four (Six)

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I still remember the first time she walked. The first time I held her hand as she tottered along with jelly legs. My daughter’s floppy musc...
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About Me

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Drakeygirl
Writer, music lover, and mother to a girl with a rare genetic condition called Prader-Willi Syndrome (PWS). This blog will tell our story. With added music. And jokes. Well, it's either this, or I'll have to express it through the medium of interpretive dance, and no-one wants that.
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