Because, as important as it is to try to give your PWS child routine, structure, and meticulously-planned days, it isn't always possible. Sometimes you can't help it - you have to wing it.
Like I did when I realised I was supposed to have sorted out fancy dress costumes for the kids for the next day at holiday club. On the theme of 'inventions'. A quick trip to Asda for some banana boxes, a roll of gaffer tape, some straws, and a print-out of the test card later, and voilà! (see photo above). Before you feel overly impressed with my creative parenting skills, bear in mind that my favourite part of this Blue Peter-style activity was wiping the smiles from their faces by telling them this was the closest they’d come to getting TVs in their bedrooms. Is this wrong?