Thursday, 7 July 2011


Six years ago I wrote a piece for The Guardian, in response to a news story that resonated with my family and our fears for the future.

A friend of mine on Twitter (@GauntletGirl) accidentally stumbled across this article when she was googling to find this blog.

It was strange, looking back at something written at a particular point in time. Some things have changed. Some stay the same. But I stand by everything I said.

You can read it here: Living With Prader-Willi Syndrome.

"Well, I can't do nothin' 'bout that, no,
But if you hurt what's mine
I'll sure as hell retaliate"
(Massive Attack - Safe From Harm)

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