My weak little baby girl is now 16 years old. Things aren’t perfect, and we don’t live in Cloud Cuckoo Land. Every now and again we hit that hard and narrow path, and the LOTWOP sign is still there, but there are a few others, too, pointing to other possible destinations. Parents of children with rare disabilities should know this more than most: anything can happen. And the anythings of life can be terrible or wonderful. We’ve had anythings of happiness that have given knockout punches to the anythings of despair, so stuff you, mapped out future nightmare world, stuff you.
Song is Idlewild - In Competition For The Worst Time
This post first appeared in the January edition of PWS News, the newsletter of the Prader-Willi Syndrome Association UK. They have a very informative website here.