Friday, 30 January 2015


You might think life is tough for a child with Prader-Willi Syndrome.

There’s the hunger, the anxiety, the learning difficulties, and all the rest of the blah blah blah.

There’s also the poor circulation, giving rise in my PWS daughter’s case to really cold hands and feet.

But I really don’t see what she’s got to complain about. She gets to wear cosy thermal socks. 

Not only that, this morning, when we awoke to snow, and realised her boots had been stored in the outside shed overnight, she sat on the stairs admiring her nail polish, whilst her dad knelt on the floor hairdrying her wellies warm.

Life of bleedin’ Riley, I tell you.

Song is Eels - To Lick Your Boots

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