A Drake's Progress: night-time wanderings

Tuesday, 5 February 2013

Transmit

After a week of peaceful bliss, we’ve had 48 hours of pissful bleak.

Stormy nights and subsequent jitterbug days, where the wild-eyed, chatty, manic, full-on force of my teenager after a night with only a few hours sleep has been a sight to behold.

Her exhausted body and her brain seems to be switching to her back-up generator and turning the dial up to 11.

It’s quite astonishing to watch.

Her only button working at the moment is TRANSMIT. The RECEIVE switch seems to be stuck in the off position, possibly from a build-up of sleepy-dust.

I’m taking her to an electrical repairer's tomorrow. That, or a can of WD40 might do the trick.

Song is De La Soul - Transmitting Live From Mars

About Prader-Willi Syndrome

The condition is a chromosome disorder which affects the part of the brain which controls appetite, growth, and sexual development. Although too weak to feed as a baby, children with PWS grow to have an insatiable appetite, and never physically feel full up. But because their bodies can't convert fat to muscle efficiently, they have to be on a strict diet, for life. If their food intake isn't controlled, they will suffer from life-threatening obesity. People with PWS are of small stature, have some form of learning disability, are unable to have children, and are unlikely ever to be able to live an independent life. Oh, and by the way, there's no cure.

A Drake's Progress

Tuesday, 5 February 2013

Transmit

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