Tuesday, 6 September 2011


A new term starts tomorrow at a new school.

She was at mainstream at first, but will now be going to her second different Special School. Along the way there have been SENCOs, IEPs and SSENs, and more BCAs than I care to remember.* 
(*Special Educational Needs Co-Ordinators, Individual Education Plans, Statements of Special Educational Needs and more Bloody Confusing Acronyms).

It seems a long time since I walked my daughter to the school gate for the first time. It is a long time - eight years to be precise.

I will never ever forget being able to do it. After the trauma and terror of her being diagnosed with Prader-Willi Syndrome, and the physio, speech therapy, hospital appointments, injections, and general hard slog, here she was. Walking - no skipping - into school.

I cannot begin to convey how relieved and proud I was.

Well actually, I can. Just look at my face.

Video is Creedence Clearwater Revival - Proud Mary


  1. That's a cracking photograph. File under 'very moving.'

  2. I worked on the local paper at the time and was writing a feature on Josie's Prader-Willi Syndrome, so Dave the photographer turned up and "papped" us. I don't suppose many paparazzi get a huge hug and a kiss from their subjects, though.

  3. A happier picture would be hard to find.

  4. Awwww... :-)
    Skirky x

  5. I know that pride. i had it too two weeks ago. There is no feeling like it. She is a poppet.

  6. PS. What a very refreshing blog. Made me laugh out loud re the bananas! Our little ones are so precious!